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EU legislation a backward step for research, says CRUK

Cancer Research UK is claiming that changes to European data protection laws will “prevent or impair scientific research that uses personal data”.

Proposed reforms to European data laws include a greater say for individuals over how their data is used, including who has access to it. The changes to the regulations were proposed in January 2012. There were a number of exemptions for scientific research but since then a committee of the European Parliament has proposed more than 3,000 amendments.

The charity says that clinical trials and population studies are “essential” to researching cancer prevention and treatment, and these trials rely on having access to data about people’s age, gender, location, health conditions and lifestyles.

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