Genome Canada and the Canadian Institutes of Health Research have launched the $3.3-million project Can-Share to develop policies and tools for clinicians and researchers to share genomic and clinical datasets.
The project will develop policies related to consent, privacy, security, paediatrics, accountability and ethical reviews. It will also involve demonstration projects that consider data related to rare diseases, cancer and other disease areas.
Science minister Kirsty Duncan said in a statement: “Through this new investment in Can-Share, our world-class researchers will be taking a leadership role in enhancing and facilitating collaboration and data sharing with the ultimate goal of improving the health and wellbeing of Canadians and people worldwide.”
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