The rise in the use of genomic medicine means that researchers need to be equipped with the communication skills to better support patients and donors who are participating in genomic research, according to the results of a study on the topic.
The research, which was carried out by Ipsos MORI’s Public Dialogue Centre, involved conversation between members of the public and experts around the UK. The final report released on 25 April shows that while most participants did not object to their genomic data being used in research, there were several “red lines” around the use of these data.
The “unacceptable uses” included the editing of the human genome without more public engagement; the use of genomic data by entities such as the government or companies to monitor people, and the use of these data in the setting of insurance premiums.
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